Waiting for Medicare Coverage: What It Means for the Disabled


After qualifying for Social Security disability support, severely and permanently disabled adults under age 65 must undergo a two-year waiting period before they can enroll in Medicare. Recent Fund-supported studies found that removing this barrier to insurance coverage would allow the disabled to access the critical care they need and gain control over their lives. To draw attention to a policy that sometimes produces devastating consequences, this project will develop a series of narratives describing the real-life experiences of individuals in the waiting period over the course of a year. Project staff also will develop retrospective case histories of those who have completed the waiting period and now have Medicare coverage. The final collection of narratives will be publicized widely to policymakers and the media.

Grant Details

Grantee Organization:
Medicare Rights Center
Principal Investigator:
Robert M. Hayes, J.D.
Award Amount:
Approval Date:
April 12, 2005

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