Country Correspondent: Ulrika Winblad

Treatment for advanced stages of rare diseases in Sweden will be centralized at no more than five locations, the government has announced. The locations of the specialized care are to be decided in December 2019. A committee at the National Board of Health and Welfare (NBHW) has proposed starting with advanced surgery for endometriosis, treatment of gestational trophoblastic disease, and certain treatments within advanced fetal medicine. The pros and cons of the new approach, aimed at maximizing the volume of cases treated by specialist providers and improving quality of care, have been intensively debated during the past few years.